Saturday, April 16, 2011
Catching up with Life
Life has a way of detouring the best laden plans, hence the absence of my writing. In the past 2 months I've been spending a lot of time with my youngest daughter who's been diagnosed with Abdominal Migraines a rare form of a Migraine Variant. Basically she goes to bed with normal vitals, healthy hydrated happy child and wakes up in the middle of the night with acute onset violent vomiting for several hours. Once the episode stops she is able to rest and we can rehydrate her. We have struggled with this for one year and has had many tests and several misdiagnosis. She is now seeing the director of Neurology at Children's Hospital (they have such a wonderful caring staff). In his 25 years he has only seen this condition 50 times. Phenergan has become our choice of "management" for the episodes which sometimes are 3x a week. We use the ER for bagged fluids if needed. She continues to have a sweet loving disposition and as I lay with her on the bathroom floor wiping her head with a wet washcloth I say a prayer and ask God to heal my baby. I don't understand why but I know that these trials we face draw us closer to the Lord and we know that we are not alone. There is strength as we wait upon the Lord. We are going on 11 days now without an episode and just so happen to be on day one of our Spring Break vacation. Looking forward to relaxing together as a family.
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